Day 21: What networks or websites have you used for support or information about your illness?
The internet is an amazing source of information, resources, and support. Below are some of the sites that I have used, and/or still use to this day for information, resources, and support.
For detailed information about POTS, causes, diagnosis, treatment, and more click here
Dysautonomia International is an amazing source of information, current research, dysautonomia related events, as well as a place to connect with other people with Dysautonomia. Please click here to visit the main site.
The Dysautonomia Information Network is also a great source of information about dysautonomia and its many forms. Additionally, it is a great place to network with other dysautonomia patients. Click here for their main site, and here for their forums.
The Gastroparesis Patient Association for Cures and Treatments (G-PACT) is a fantastic resource for people with gastroparesis, intestional psudo-obstructions, and chronic inertia. Click here for their webpage, and here for their facebook group.
The Mighty is probably one of my favorite, and most visited sites. It is a community that allows people to share their chronic illness stories with others. It is not limited to people with dysautonomia or gastroparesis, but in fact covers MANY chronic illnesses and disease. Stories written for the page are written by fellow chronic illness warriors. Please click here for their website, and here for their facebook page. https://themighty.com/
Additional facebook groups: