Day 20: Spoonie friends!

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Hello lovlies. thanks for coming back again today.

Day 20: Have you met anyone with the same illness(s)? Did it help? 

POTS is a very unknown disorder to just about anyone. So when you hear about someone with POTS you think they must be in the minority. I thought that myself after I was diagnosed. I felt completely alone, and isolated. What’s interesting is how very many people you learn have POTS after you or someone you know has been diagnosed with it. In fact, according to Dysautonomia International, it is estimated that between 500,000 and a million individuals (mostly women) are effected by POTS. I know of at least 5 or 6 others in my immediate area that also have POTS and other conditions related to their POTS. In addition to this, there are tons of facebook groups that have allowed me to network with and come together with other people with POTS, Dysautonomia, and Gastrointestinal dysmotility.

Knowing and talking with people both online and in person who have the same issues as you is immensely helpful.The truly understand what it is I am going through, as they have been there themselves. Additionally, others with POTS and other chronic illnesses don’t judge you or give you a hard time for having to cancel plans due to low energy, doctors appointments, etc.Though Chronic Illness is always isolating, having spoonie friends also helps to decrease the amount of isolation.

 

Thanks for reading.

Lots of Love,

megan

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